Claire's Quarterly Newsletter

Rett Syndrome may have taken away most of Claire's physical abilities and added a host of medical challenges, but it hasn’t touched her vibrant mind or joyful spirit!  

Claire is a bright, social, and determined 14-year-old who uses eye gaze and other methods to read, write, and share her thoughts.  She’s involved in school clubs, loves connecting with others, and always has something clever or funny to say. 

Through Claire's Corner, we hope you get to know more of what’s inside Claire’s mind ~ who is she and what is she thinking? We also hope that through Claire’s Corner, you too can see what is possible, despite a diagnosis that might suggest otherwise.